Видео с ютуба Rare Disease Conference

European Rare Disease Ecosystem: A Collaborative Path Forward, 9 November 2021

European Rare Disease Ecosystem: A Collaborative Path Forward, 9 November 2021
How to become a rare disease advocate | Hadee Pandwani | TEDxUpanga Youth

How to become a rare disease advocate | Hadee Pandwani | TEDxUpanga Youth
Rare Disease Day 2020: Closing Remarks

Rare Disease Day 2020: Closing Remarks
Drug Repurposing for Rare Diseases Conference 2019 - Rachael Stevenson & Becky Jenner

Drug Repurposing for Rare Diseases Conference 2019 - Rachael Stevenson & Becky Jenner
CENTOGENE's Rare disease day 2016 charity event

CENTOGENE's Rare disease day 2016 charity event
DENISE D'ASCENZO ANNUAL EVENT WALK to FIGHT RARE DISEASES- VIRTUAL WATCH - LADYRANGER

DENISE D'ASCENZO ANNUAL EVENT WALK to FIGHT RARE DISEASES- VIRTUAL WATCH - LADYRANGER
The London Rare Disease Showcase 2023

The London Rare Disease Showcase 2023
Genomics of Rare Disease 2021 virtual conference - lightning talk - Paul Marcogliese

Genomics of Rare Disease 2021 virtual conference - lightning talk - Paul Marcogliese
Kleefstra and Kleefstra-like syndromes in the Spanish Undiagnosed Rare Diseases Program

Kleefstra and Kleefstra-like syndromes in the Spanish Undiagnosed Rare Diseases Program
Patient-Focused Drug Development Meeting: Part 2 (2016 MDF Annual Conference)

Patient-Focused Drug Development Meeting: Part 2 (2016 MDF Annual Conference)
2019 NBIA Conference - The Pace of Research for Rare Diseases

2019 NBIA Conference - The Pace of Research for Rare Diseases
IV Congress Iberoamerican of Rare Diseases 1/3

IV Congress Iberoamerican of Rare Diseases 1/3
Rare Disease Diversity Coalition Celebrates with 2nd Annual RISE Awards

Rare Disease Diversity Coalition Celebrates with 2nd Annual RISE Awards
Chapman Shum's Story @ Rare Disease Day #RareDiseaseDay #blindpianist #Feb29 #leapyear #leapday

Chapman Shum's Story @ Rare Disease Day #RareDiseaseDay #blindpianist #Feb29 #leapyear #leapday
Regional Conference for Rare Diseases in Malaysia and Asia Pacific - Day 1

Regional Conference for Rare Diseases in Malaysia and Asia Pacific - Day 1
ALD Hope First Event on Rare Disease Day

ALD Hope First Event on Rare Disease Day
Saudi Rare Diseases Moonshot Pledge - 10th of March 2023 Event Summary

Saudi Rare Diseases Moonshot Pledge - 10th of March 2023 Event Summary
Press Release and News Coverage of the Global Gathering for Rare Diseases - 11 November 2016

Press Release and News Coverage of the Global Gathering for Rare Diseases - 11 November 2016
Chardan Ophthalmology Conference Series - Rare Disease ft. Ocugen

Chardan Ophthalmology Conference Series - Rare Disease ft. Ocugen
Fight Farber Foundation hosts fundraiser to support rare disease research

Fight Farber Foundation hosts fundraiser to support rare disease research